Health Insurance Portability and Accountability Act (HIPAA)
Latest news...
The HIPAA Standards for Privacy of Individually
Identifiable Health Information -- Final Rule (also known as the "Privacy Rule")
was issued on August 8, 2002 and will appear in the Federal Register on August 14, 2002.
(442 pages, PDF).
The links below provide related material.
Excerpts from the Final Rule of 8/8/2002 related to computer-based solutions
for de-identification under HIPAA
(PDF).
See also
Latanya Sweeney's
original public comments to which these HHS excerpts
are related
(PDF).
Excerpts from the Final Rule of 8/8/2002:
De-Identification of Protected Health Information
(9 pages, PDF).
On March 27, 2002, the U.S. Department of Health and Human Services published
proposed amendments to the Privacy Rule.
Latanya Sweeney, as Director of the
Laboratory for International Data Privacy
at Carnegie Mellon University, submitted public comments to HHS on the
proposed modifications to the Privacy Rule
(HTML,
PDF). Submitted to HHS on 4/26/2002.
The compliance date for most covered entities (health care providers, health plans,
clearinghouses) is April 14, 2003.
Federal Register containing proposed modifications
(PDF). Citation:
Office of the Secretary; Standards for Privacy of Individually Identifiable Health
Information, Proposed Rule, Federal Register, vol 67, no 59, Wednesday, March 27, 2002.
Federal Register containing Privacy Rule
(Part1,
Part2,
Part3,
Part4,
Regulation only).
Citation: 45 CFR Section 160 through 164.
Department of Health and Human Services,
Office of the Secretary; Standards for Privacy of Individually Identifiable Health
Information, Final Rule. February 26, 2001.
Contact Sherice Livingston
if you have URLs, papers, or organizations to add to the list
below that provide resources related to de-identification under HIPAA.
To encourage a free flow of ideas, all points of view are accepted.
Other Publications
Statistical Policy Working Papers on Statistical Disclosure Control.
(papers)
Latanya Sweeney, Ph.D. Thesis at MIT on Computational Disclosure Control.
(PDF)